Santa Fe Parkinson’s Disease Action Group
Last updated on April 26, 2025.
The Santa Fe Parkinson’s Disease Action Group and POP Santa Fe
are joining forces to become the
POP Santa Fe Action Initiative!
Care Partners
Gathering
Zoom
First Wednesday of the month 2pm Mountain.
In-Person
Support Group
Second Thursday of the month 1:30pm Mountain.
Online
Support Group
Zoom
Fourth Thursday of the month 1:30pm Mountain.
Announcements
Place: The Montecito of Santa Fe 500 Rodeo Road, Santa Fe, NM, 87505
Time: May 3 @ 9:30 am – May 3 @ 12:00 pm
Register or donate today!: https://movingdaywalk.org/event/moving-day-santa-fe/
Moving day is a national fund-raising event for the Parkinson's Foundation. Last year, Santa Fe raised over $50,000 to help cure Parkinson's Disease.
- Grieving the Death of A Loved One
This group program is for those who have experienced recent deaths of family, friends, or colleagues. It is free-of-charge and is facilitated by Eileen Joyce, Certified Coach and Grief Recovery Specialist with 25 years of experience. The group is sponsored by the Memory Care Alliance and is free of charge to participants.
The purpose of this program is to learn and share in a confidential setting. Each week we will discuss grief and loss and how they affect daily life and relationships.
Meetings over the six weeks will cover:
- Losses and how we deal with them
- The myths about grief, loss, and healing
- How unresolved grief affects our capacity for happiness
- Creating resilience even in times of greatest challenges
Please contact Eileen to reserve your place: email ej@eileenjoyce.com or call 505.428.0670 .
Download the full flyer:
- NM Aging & Long-Term Services
The team at the NM Aging & Long-Term Services Department has shared the following resources with us.
Aging and Disability Resource Center (ADRC)
The Aging and Disability Resource Center (ADRC) is one “hub” that can navigate people in the right direction.
Veteran-Directed Care Program
Veteran-Directed Care gives Veterans of all ages the opportunity to receive the Home and Community Services they need in a consumer-directed way. The flyer provides more details and contact information.
New Mexicare
New MexiCare provides financial assistance and training to caregivers who are assisting friends or family members with daily activities due to physical or cognitive limitations. The goal of the program is to allow older adults to thrive in their homes and communities as an alternative to nursing home placements and to help reduce emergency department visits.
- Moving Day 2025Moving Day Santa Fe
Place: The Montecito of Santa Fe 500 Rodeo Road, Santa Fe, NM, 87505
Time: May 3 @ 9:30 am – May 3 @ 12:00 pm
Register or donate today!: https://movingdaywalk.org/event/moving-day-santa-fe/
Moving day is a national fund-raising event for the Parkinson's Foundation. Last year, Santa Fe raised over $50,000 to help cure Parkinson's Disease.
Upcoming Events
Moving Day Santa Fe
Join us for our upcoming Moving Day — A Walk for Parkinson’s Event.
Help Santa Fe raise $50,000 for the Parkinson's Foundation!
Participants are invited to put on their Moving Day gear and join us in person at Moving Day Santa Fe. This year’s event will put our community’s energy on full display as we celebrate movement together.
There are many ways to participate if you can’t be there in person. Please register OR register and create your own team OR just donate!
Find out more »Care Partners Gathering
May 7 @ 2:00 pm - 3:00 pm MDT
This is a time for introductions, getting acquainted and bringing up any topics you wish to discuss – at this meeting and/or in the future. This is your meeting; “The experts are in the room!"
Remember, you must be a subscriber to our Care Partners newsletter to get the Zoom link. Subscribe Now!
Find out more »Recovery Day! No In-Person Gathering Today.
May 8 @ 1:30 pm - 2:30 pm MDT
There will not be an in-person meeting today. We hope to see everyone in two weeks at the regularly scheduled online gathering.
Find out more »The PERSEVERE Study
May 22 @ 1:30 pm - 2:30 pm MDT
Sarah Mitchell Chen LCSW, APHSW-C, Rush Medical Center
PERSEVERE is a national study funded by the National Institutes of Health, led by Dr. Jori Fleisher at Rush University Medical, which is testing an educational program for family caregivers of people with Parkinson's Disease who are experiencing changes in memory & thinking. PERSEVERE will test whether a disease-specific, caregiver-centered educational intervention improves caregiver knowledge, confidence, strain, and health outcomes – and whether it helps people living with Parkinson's Disease, too.
Family caregivers will receive weekly educational guidance through a 12-week curriculum with resources and activities. All participation is virtual and scheduled when it works for you. There are no in-person visits and the person with Parkinson's does not participate—just caregivers. Caregivers fill out online surveys and assessments at baseline and every two weeks throughout their involvement in the study, including a six-month follow-up period after the 12-week curriculum.
Interested in learning more? Visit https://redcap.link/PERSEVERE1 to watch a video providing more information about the study and hear testimonials from prior PERSEVERE study participants. Or visit the social media pages for the study like to follow along and learn more tips and tricks from the study team.
- TikTok: the.persevere.study (@the.persevere.study) | TikTok
- Instagram: Instagram @the.persevere.study
- Facebook: Facebook - The Persevere Study
About the Presenter
Sarah Mitchell Chen LCSW, APHSW-C is a Licensed Clinical Social Worker at Rush University Medical Center with more than 15 years of experience working as a clinician, program coordinator, and research team member with the PERSEVERE study. Sarah has spent her career providing care management in long-term care and ambulatory healthcare settings, where she works to address non-medical barriers to wellness and improve health outcomes for patients and care partners, focusing especially on individuals and families impacted by symptoms of various neurodegenerative disorders and forms of dementia. As a result of her work with the Advanced Interdisciplinary Movement Disorders Supportive Care Clinic at Rush, Sarah has completed advanced training and certification in palliative care. Sarah earned a master’s degree from the University of Chicago Crown Family School of Social Work, Policy, and Practice.
The access link to the Zoom call is emailed to everyone on the mailing list 24 hours before the meeting. To be invited to the Zoom gathering, you must first sign up for our mailing list.
Find out more »